Juan Jose was born on April 26, 2000, He got the best qualifications in the apgard scale as well as a perfect weight and height. He said his first words when he was one year old, and he started walking when he was 15 months old. When he turned 5 years old we (at home and at school) noticed that he had some attention and conduct problems.

The teachers at his school recommended a psychologist who, after some tests she diagnosed J.J. as having TDA. The psychologist then recommended a neurologist.

The neurologist had an electroencephalogram practiced on him. And after seeing the results he was able to confirm the previous diagnoses: TDA.

The neurologist strongly recommended that he take some control use medication every day.

At age 3, J.J. started to show a severe eye problem known as strabismus. (cross-eyed) so we decided to take him to an eye doctor for some specific eye tests to find out why his eyes were deviating. The eye doctor only ran some tests to check how accurate his sight was, and in that very appointment he told us that JJ needed to be operated on in order to correct his eye problem.

It was a cosmetic surgery and it was done when he was 5 years old, according to the doctor after the surgery his eyes would be normal again.

When he turned seven we decided not to give him any more medication, or at least reduce the doses that we were giving him at first.

His behavior and mood suffered drastic changes, from being a lively and playful child who enjoyed playing and singing with his cousins and friends at family reunions, he turned into a total different child who only wanted to be sleeping all day long.

Shortly he began showing the following symptoms: He was shivering all over, and again his eyes were deviating, his eyesight decreased, his mum noticed that his head started to grow, he also began losing his balance and walking started to be a very difficult task for him. Strong headaches began to appear.

We contacted the same eye doctor and he again ran the same tests that he had run before, he again recommended cosmetic surgery to correct the damage.

Finally on august 22, 2008 (impossible date to be forgotten) the neurologist gave us an appointment (after being putting off previous appointments).

When we arrived to the hospital in Sta. Fe, I had to carry my son because he was unable to walk by himself, the doctor kept us waiting for a long time and even though JJ was having strong headaches and dizziness, the doctor´s secretary kept saying that he doctor would be with us in a few minutes. When the doctor finally saw JJ he was outstandingly shocked as he noticed that my son was very very bad. After some other tests he could confirm that half his face was paralyzed.

JJ was immediately sent to have a CAT (computerized axial tomography) performed on his skull and to our surprised the CAT showed a gigantic cystic tumor (craniopharyngiomas).

IN SHORT

As you have already realized the doctors were not able to detect what my child had inside his head, not even the pediatrician, to whom my wife continuously reported all the headaches that my son was having and the abnormal head growth. The doctor just kept saying that this growth was due to hot weather and that the head growth was normal in children since the head grows faster than the rest of the body.

The ophthalmologist (eye doctor) just performed a cosmetic surgery and was about to perform another one, even though he was aware of the symptoms that my son had. He never did any further research and he was only interested in performing the operation and collecting the money from his work.

Now, about the neurologist, I would rather not say his name or the other doctors' names. How could he diagnose TDA with only one test? How could he prescribe that medication instead of having more tests made on my son in order to eliminate all the symptoms? It was only when he realized how bad my child was when he had the CAT performed on him.

The tumor that JJ had inside his head was developing even before he was born, and as unbelievable as it may sound none of the doctors were able to detect it!

I wonder if both the neurologist and the ophthalmologist are aware of the damage they caused to our family, but especially to my son Juan José, who means everything to us
.

I wish they remembered that they must love their vocation and not the money.

A recommendation to all parents:

If your child has frequent headaches it would be a good idea to have a CAT performed on him, or to have this CAT performed on all children when they turn 2 years old as a routine test in order to rule out any possible damage inside their heads before it is too late.

If you notice that your child shows any eye deviation, apart from taking him to the ophthalmologist, ask for a CAT (Computerized Axial Tomography) analysis.

And finally DO NOT be impressed by doctors who work in prestigious hospitals and DO NOT think that they are the only ones that can assist you child, these doctors sometimes are only after the money they make for them and for the hospitals they work at.